| Welcome on LSA French web site ! French association of Lowe Syndrome (L.S.A) gathers families having children reached of this genetic disease rare and forgotten that we qualify «orphan disease». The World Health Organization estimates at 5000 the number of these diseases in the world. |
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To make them leave the lapse of memory
is a difficult task. We try to do so by taking part each year since 1996 in the red nose day campaign with French Genetic Research Association ( federation of genetic orphan diseases ).This demonstration is organized in whole France and consists in selling red noses of clown to help research on orphan genetic diseases. |